WITHOUT A DOUBT THIS IS THE FAMILY OF THE YEAR 2017
We Are The Mighty Family. As a husband, father and caregiver I know how hard life can really get. Unfortunately we live in a society where some people only care about things when it is only happening to them. Please do not get me confused I am only giving you facts about life and I am not complaining in any way. The fact is that I love life and I am really grateful for everything that I have ever gone through and I am still going through.
I would like to bring to your attention today a special Family I have gotten to know through Facebook. This family has unknowingly been giving us the strength and energy that we have needed day in and day out. I am talking about the Devoe family.
This family has a 13 year old son (Markie) that has “choroideremia” yes like many of you I have never heard about this but when I think how hard it must be not only for the parents but wow how hard this is on Markie. I can’t even imagine what these parents are going through.
Sorry this is what this is:
Choroideremia is a condition characterized by progressive vision loss that mainly affects males. The first symptom of this condition is usually an impairment of night vision (night blindness), which can occur in early childhood. A progressive narrowing of the field of vision (tunnel vision) follows, as well as a decrease in the ability to see details (visual acuity). These vision problems are due to an ongoing loss of cells (atrophy) in the specialized light-sensitive tissue that lines the back of the eye (retina) and a nearby network of blood vessels (the choroid). The vision impairment in choroideremia worsens over time, but the progression varies among affected individuals. However, all individuals with this condition will develop blindness, most commonly in late adulthood.
This family gives family values a new meaning. We are honored to call them our friends. Since we are a few days away from Christmas I thought that I might ask all of my readers to just take a look at these website. Angels for Mark and CURECMH.ORG. If you could find it in your heart to donate or even just learn more about this terrible disease. People please find it in your heart to follow this family and give them the support and prayers they need. Thank You Happy Holidays to all.
The Mighty Family