THE DEVOE’S FAMILY IS WITHOUT A DOUBT ONE OF THE MOST AMAZING FAMILY I HAVE EVER HAD THE PLEASURE TO INTERACT WITH. I ONLY HAD A FEW SOCIAL MEDIA INTERACTIONS WITH MR. DEVOE BUT ONCE I READ HIS STORY AND SAW THE YANKEES MAGAZINE SEGMENT I AM FOREVER TOUCHED. THE BOND AND LOVE THIS FAMILY HAS FOR ONE ANOTHER IS INSPIRING. I LOVE TO HEAR THAT MASON WILLIAM’S A NEW YORK YANKEES MINOR LEAGUE PLAYER GOT INVOLVED IN THIS CHARITY.
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Mark DeVoe is a 12 year old boy who has a retina eye disease called Choroideremia.
choroideremia cho·roid·e·re·mi·a (kôr’oi-də-rē’mē-ə, kô-)
Congenital absence of the choroid of the eye.
The progressive degeneration of the choroid in males, beginning with peripheral pigmentary retinopathy, followed by atrophy of the retinal pigment epithelium and of the choriocapillaris, night blindness, progressive constriction of visual fields, and finally complete blindness.
Thank you so much for taking the time to visit Angels for Mark. So much has changed since we launched this site.
Clinical Trials have begun (fall 2014), so we are in exciting times. Phase one is a safety phase and does not include children under 18. Phase two will begin 2 years following the completion of Phase one ( about 2 years). We hope and Pray that Lil Mark is picked for Phase two.
UPDATE 2016: We are still waiting for the FDA to approve those under 18 year old can be included in the Trials.
As always check back often, We will be scheduling many events and will report any medical updates.
Thanks again for stopping